Caring for an Elderly Parent is a Challenge but Rewarding Too

by Sue
(East of the Mississippi)

It's scary sometimes but caring for an elderly parent can sure be a challenge but without a doubt it is rewarding too.

Little did I know that when I picked my 73 year old mother up from the airport less than 3 years ago how much my life would change.

Mom loved to travel and frequently would book bargain trips through the "Elder Hostel" organization. This trip was to the rainforest in South America. As a (hyper)active woman I was no surprise that she was zip cording through the tree tops in the rainforest and white water rafting. Yee Haw! She was having a blast going where very few "elderly" would ever consider going and doing activities that would even have me thinking twice.

As I pulled up to the pick-up spot at the airport I saw this sunken old woman bent over in a wheelchair left at the curb. I thought to myself, "How cruel that someone would abandon a poor old person like that." I didn't see my mother so I circled the airport two or three times trying to reach her on her cell. Each time I passed the pick-up spot that poor old woman was still huddled in that wheelchair.

I think my anger that someone could treat anyone so harshly made me stop to ask if I could help.

Yes, you are absolutely right. . .

That poor old woman was my mother!

I barely recognized her.

Her face was contorted in pain, she was all hunched over and had this frail, fragile look. Needless to say I was shocked and very concerned! But of course, as a nurse, my mother had self-diagnosed herself as having a slight back strain that was severely aggravated by the long flight and she refused to let me take her to the emergency room.

As her pain increased, the next three days became a challenge to get her in to see the back specialist, diagnosed, and to make sure she was as comfortable as possible.

The fourth morning as I checked on her had me dialing 911 and transported to the emergency room. She had become incoherent and violently ill. I thought it was from the pain medication.

How wrong I was.

Our little community hospital discovered she barely had any white blood cells, a sure indication of a rapidly spreading cancer. They called a med-flight to bring her to Mass General.

She was given a few days to live.

Not surprising, as a true, hardy, tough as nails fighter, Mom managed to beat back the cancer for almost 6 months. Her goal was simply to get well enough to go home.

She did. I brought her home to stay a handful of weeks here and a few days there when her health allowed so she could tend her beloved gardens and sink into her own bed.

We laughed together. . . a lot.
I cried. . . a lot. (Mom doesn't cry, she fights.)
I had raging temper tantrums at my brother who wanted to dictate treatment plans from across the country but was too "busy" to come help.
I snuggled into my husbands arms in exhaustion every night.
I cried some more.
More raging fits of temper tantrums at hospital staff who didn't tend to my mother for hours on end as she struggled to get to the bathroom on her own, feed herself, or to get a simple drink of water. (It's amazing what a quick response you get when you collapse in a heap, cry hysterically and bang the floor with your fists in front of the nurse's station! Boy, do they ever hop to it and FAST! It's a highly recommended strategy in getting the care you need for anyone who has to stay for extended times in the hospital.)
Then of course, much more laughing with my Mom and sister.

As the cancer attacked Mom's brain she started to hallucinate rather frequently.

Believe it or not, the time she pointed her shaking finger at me as I was leaving her hospital room after feeding her breakfast and demanded that I take the lion pacing at the door with me on my way out is one of my favorite memories. After I suggested that it was her "guardian lion" here to protect her she grudgingly consented to let it stay for a little while. She then settled in to have a rather long and pleasant chat with her guardian lion for the entire morning!

Mom created an entire new repertoire of stories for us that now we share with each other and laugh together instead of cry when we trade our memories.

Caring for an elderly parent, one who is defying death with every fiber of her being, is one of the hardest things I've ever done but created the most precious and lasting memories.

Everyone relieves stress in different ways.

I choose laughter, hysterical crying and collapsing in a heap of raging temper tantrums. Each worked its own magic in getting me through the next moment, the next hour, and the next day.



Sue,
Your story touched my heart and brought tears to my eyes. Caring for a loved one is an emotional roller coaster. I am so glad that you have good memories of your mom.

As a patient advocate and family member, I, too, have been in situations where I threw "temper tantrums" to get the attention of the staff to provide appropriate care.

Too many family members do not want to "bother" the staff. In today's medical delivery system, the staff is expected to do more with less. It is necessary for a family member to be proactive and advocate for appropriate care.

My E-zine readers upon sign up, receive the opportunity to take a FREE E-course on the subject "Advocating For Yourself and Others".

Thank you for sharing your story with us. I hope others will share their experiences here as well.

Diane Carbo RN